Monday, March 30, 2009

Pictures







We went and had pictures taken today, and it was such a frustrating experience! I worked so hard to find the perfect outfits, drove 45 minutes to go to the last place we went since we loved it so much, and had a horrible experience! Ugh. The photographer drove us crazy (the guy who did them last time no longer works there) and missed about a million opportunities for good, candid photos because she was trying too hard to pose everything. She wanted Brayden to stand still in an exact spot, put his hands in his pockets, turn his body one way, look a different way, and not move. Ummm...did you not see my child running around the studio like a madman while we were waiting for our turn? And then with Cameron we didn't get any good shots of him that showed his adorable matching hat and pants - she kept taking his hat off. And I really wanted a picture of the 2 of them together and that didn't happen - they only gave us 2 of those to choose from and they were both horrible. I could dress them up and take a picture in my living room floor that looks better than hers did. Just an all around annoying experience. I hate the background and wanted the white, but she thought the brown would look better. Why? I want a do-over! Here are the only 4 decent ones we got out of the deal (after I have edited them and touched them up), and Cameron is crying in the family shot.

Friday, March 27, 2009

2nd Opinion

So I went with Rubin to his doctor's appointment today and this woman seems to think that his Crohn's is back and that is what has been causing his problems since the surgery. She is having him go do a barium x-ray on Monday morning so she can see what is causing his blockages, but she doesn't think it's scar tissue. She was floored that they did surgery on him so soon without trying other treatments first. There are several medications/treatments out there that have been proven successful for a lot of people that he has never tried. She also couldn't believe that a general surgeon actually performed the surgery - she said that most surgeon's won't touch someone with Crohn's and that they don't understand it. She sends her patients downtown if they require surgery. So to sum it all up - it sounds like surgery was the wrong decision in the first place, and that it was all for nothing because it didn't solve the problem. It got rid of the inflammation in the places that already existed, but doesn't prevent it from occurring somewhere else. She wants to start him on a medication that he can self-inject every 2 weeks but it will probably be a couple of weeks before we can get that process started. Until then she is going to put him on steroids and another medication he already has (but was told by his other doctor he no longer needed to take) to try and get him feeling better. He also has to stay on liquids for a couple more days and then can progress to Bananas, Rice, Applesauce, and Toast by Sunday. The poor guy hasn't put a bite of solid food in his mouth since last Friday.
So, basically what I'm saying is that although we didn't want to hear that the Crohn's is back and that he suffered through his horrible surgery for nothing, we are glad that someone is acknowledging what is really going on and is going to actually treat it so he can start to feel better and try to get our lives back to normal.

Monday, March 23, 2009

Crohn's Disease Sucks!!

So Rubin was back in the hospital this weekend - he went in Saturday afternoon and came home this morning. This is his 6th time there since November, and his 3rd time back since the surgery that was supposed to fix his problems. We were told that the surgery would put his Crohn's in remission and that he would most likely experience symptoms again someday, but that it could be years before it returned. He went through hell and back with his surgery and recovery, and still has never felt healthy since. He has had 3 bowel obstructions: the first time they told him it was caused by the scar tissue from surgery and shouldn't ever happen again; the second time he didn't go to the hospital and just dealt with it at home; this weekend he went to the hospital but nobody would really give him any answers - they just treated him and sent him home. His GI doctor wants to blame the surgery for his problems and won't admit that the Crohn's is acting up again already, but I'm pretty sure that's what is really happening. I would rather not be lied to (and told he doesn't need to be on any medication). If the Crohn's is back, let's admit it and move on so we can deal with it and try to get things under control. This whole situation is very frustrating for us. He is miserable, and I just want him to feel better. He has made an appointment with another GI doctor for this Friday to get a second opinion. We want to get an unbiased opinion from someone who isn't trying to cover their own butt and will just be honest about what they think is really going on.
Well, that was my vent/update for now. Please just pray that he gets some answers on Friday and that we can move forward and hopefully get this stupid horrible disease under control.

Random Questionse

1) I work with, love, respect, and admire people with disabilities. However, I do not think it is very likely that 90 people with a "handicap" will be at Wal-Mart at the same time. Why are there soooo many handicap parking places? It makes it impossible for a mother of a small baby to park close when it is cold, windy, and raining outside.
2) Do calories work like Weight Watchers points? If I cut out a few extra each day, can I use them as "flex" calories and go eat at Chili's or On the Border?? That would be nice. According to the calorie log I use, I was 3,097 calories under my weekly budget last week, so do I get to use them or do I just lose them??

Sunday, March 22, 2009

Yellow People

Brayden: "That light is really too high for me to jump over it" (pointing to the light over the dining room table - random)
Me: "Um, yes it is"
Brayden: "But I just can't jump over it because it is too hot and that would make me all red. I don't want to be red I just want to be yellow"
The light wasn't even turned on.

Sometimes I just wish I could be inside his head so I could understand what in the world goes on in there. He says some of the most random things.

On another note, I bought the Wii Fit on Tuesday night and worked out on it for the first time on Wednesday, and I started dieting on Monday (counting calories). Between the 2, I have lost a little over 2 pounds. I woke up this morning and I am extremely sore. I don't know if I should be happy that I feel sore b/c that means that its working, or to be completely embarrased that a video game can make me hurt so bad!

Tuesday, March 17, 2009

The Jetsons?

So I saw a commercial the other day for a car that will stop itself to avoid an accident if something stops in front of you. Crazy. Between back-up cameras, this new thing, and GPS, why do we even have to drive? Pretty soon we can program our destination into our GPS and our cars will just drive us there. Then we can talk on our cell phones or sleep in the car. Sounds good to me! :)

Thursday, March 12, 2009

Well there is nothing much to update about Cameron - he eats, sleeps, poops, and grunts! He has done really great at night this week - most nights he has slept 5- 6 hours straight and it has been awesome!
Brayden, on the other hand, is hilarious and I have to start writing down the things he says because I always forget them. So here are some "Brayden-isms" of this week:

Tuesday: I am tying his shoes and his backpack is hanging next to us. He kept saying, "Mommy my truck is in my pack pack - do you see it? Do you see it? It's right there, Mommy, do you see it?" I continued tying his shoes and just said "Sure" to get him to be quiet. He said "Oh, you see it? I can't see it. Do your glasses make you see it?" Yes, I have super-powers. My glasses give me x-ray vision.
Wednesday: I was messing with my shirt and Brayden saw my lovely stomach. He asked me "Mommy, what happened to your tummy?" "Oh nothing buddy, Cameron did that to me when he was in my tummy." "Oh, did he paint stripes on it?" Thanks.
Today: We made cupcakes, and he licked the bowl, very literally. His face was covered in chocolate and I told him to come over so I could wipe it off. He said "But I can just use my tongue to clean it!"

Monday, March 2, 2009

1 month

Cameron is a month old today! I can't believe it has already been a month - time has gone by pretty quickly. He is filling out and getting so much bigger, and he spends more and more time alert and awake during the day. He makes adorable little noises and smiles. And no, he does not sleep through the night - I seem to be asked that a lot. We are far from it... He is still having issues with gassiness and I'm trying to figure out the magic solution. We have tried different formula, bottles, and have just heard of gripe water so we are trying that now.
I am feeling a lot better, and I'm done "taking it easy". There is too much stuff that needs to get done and the longer I sit here and let it go, the more overwhelming it is going to be when I decide to finally tackle it. I am still extremely sleep deprived, which makes me kind of cranky most days, but there isn't much I can do about it. I am able to get back into 3 pair of jeans already, but shirts are a different story - I still have the flabby nasty tummy pooch and probably will for the rest of my life, but I'm going to try and make it smaller. I officially decided to start a diet today, and plan to start working out once the doc gives me the okay in 2 weeks. Until then, I still have an excuse...lol
Brayden started preschool today at the park district and he was so excited! He seemed to really enjoy it, and the teachers said that "he just needs to get used to the schedule" so we aren't sure what that means, but it doesn't surprise me at all. He likes to do what he wants when he wants and isn't used to being in a structured setting (he has been in a home daycare for the past year). This is part of the reason we put him in preschool so hopefully he'll adjust pretty quickly.