Tuesday, June 30, 2009

24 hours later

So they decided to admit Rubin last night around 2 am, but then never moved him up to a bed. They kept him down in his ER room (which was a room with a camera and straps on the bed to hold down crazy people) the entire time. He did see one of the GI doctors there, and she told him that his doctor was completely wrong to send him there to the ER. She said they would treat him, but didnt seem to be interested in trying to figure out the problem. He eventually got fed up tonight and I went and picked him up. He did speak to this GI dr again as she was writing his discharge paperwork, and she again told him that she couldn't believe his doctor sent him there - that the ER there is scary (and it was pretty crazy). She did say that if he calls her directly, she will pull some strings and try to get him in for an appointment sometime this week or next week. So although he spent over 24 hours in ER hell, it hopefully did some good in putting us in touch with one of these doctors. It at least feels like a step in the right direction.
So anyway, long story short, don't ever go to the ER at U of C, even if your doctor tells you to. Rubin is home now and feeling a little better. Hopefully he will stay that way for a while, or at least until he can get in to see this specialist.

Monday, June 29, 2009

Long overdue update

It's been a while since I've updated so here goes...
Rubin has been in the hospital 4 times since his surgery on May 27 - fun stuff. He was home this past week and slept all day every day. He doesn't look good, he's really pale, and he is still in a lot of pain. He went to his GI dr on Friday for an appt and she has no clue what is going on with him so she tried to get him in to see a specialist at University of Chicago Medical Center. He is supposed to be one of the best Crohn's doctors in the country, and he couldn't get Rubin in until September for an appointment. So, Rubin's dr suggested coming here to the ER and then hope that they will admit him and he will get to see someone here, so that's where we are now. He was released from CDH this afternoon and we drove straight here - the drive wasn't bad at all, but we waited over 5 hours in the waiting room before he finally was brought back here. We are probably starting all over again to an extent because they are going to want to do a ton of tests but hopefully they can figure something out. Tonight is going to be a LOOOOONG night.

Saturday, June 6, 2009

4 Years and 4 Months

Wednesday both boys had a doctors appointment - Brayden for his 4 year check up and Cameron for his 4 month. Both of them are perfect and healthy, and both of them got shots (which Cameron handled MUCH better than Brayden did). Cam is 15 lbs, 8 oz and 25 inches long - in the 63rd percentile for both. Brayden is 40 lbs and 42 in, and is in like the 87th percentile for his height. He has always been way up there - Rubin hopes this trend continues so he can be a basketball player. I prefer baseball or football, but we'll see...he'll probably end up playing soccer, which neither one of us care for.
They are both growing up so fast, not just physically. Brayden has something new to say every day and is constantly cracking us up. Last night he was in trouble and Rubin was talking to him about it, and Brayden looked at him and said "Daddy Casey, you stop that". It was hilarious, especially since that is Rubin's actual middle name. Cameron is holding his head up really well now, and he talks and giggles constantly. So precious. I find myself snuggling him and holding him a lot more than I feel like I did with Brayden. Maybe it's because I realize now how fast they grow up and how quickly they stop wanting to be held. Maybe it's because (Rubin says) this is my last one and I want to hold onto having a baby as long as I possibly can. I can honestly say though that I love being a mommy now more than I ever have. Most people think that having 2 kids is so much harder, and it's not that it's easy, but I just love having so much love to give to these boys. I have 2 adorable, healthy kids and I am so blessed. I have 2 boys to hug and kiss and cuddle and make me smile and make me laugh (and make me want to pull my hair out!). I absolutely love it!

Tuesday, June 2, 2009

Home again

Rubin is home again...hopefully this time for good. I don't know how much more our poor family can handle. I don't know how much I can handle. I'm exhausted. I need my husband. Our boys need their daddy. Rubin needs to feel normal. He was first diagnosed with Crohn's on November 18, and since then I think he has been in the hospital about 15 times, and I'm not exaggerating. We haven't spent any holidays together since then. We haven't been able to spend time with Cameron and do things as a family. We haven't been able to take Brayden places or do things with him. We haven't been able to spend time together as a couple. Since I've gone back to work I feel like I've been pulled in too many directions and have tried my best to stay strong and be superwoman but it's starting to wear on me. We need a break. Please, please, please be over.