So Rubin was back in the hospital this weekend - he went in Saturday afternoon and came home this morning. This is his 6th time there since November, and his 3rd time back since the surgery that was supposed to fix his problems. We were told that the surgery would put his Crohn's in remission and that he would most likely experience symptoms again someday, but that it could be years before it returned. He went through hell and back with his surgery and recovery, and still has never felt healthy since. He has had 3 bowel obstructions: the first time they told him it was caused by the scar tissue from surgery and shouldn't ever happen again; the second time he didn't go to the hospital and just dealt with it at home; this weekend he went to the hospital but nobody would really give him any answers - they just treated him and sent him home. His GI doctor wants to blame the surgery for his problems and won't admit that the Crohn's is acting up again already, but I'm pretty sure that's what is really happening. I would rather not be lied to (and told he doesn't need to be on any medication). If the Crohn's is back, let's admit it and move on so we can deal with it and try to get things under control. This whole situation is very frustrating for us. He is miserable, and I just want him to feel better. He has made an appointment with another GI doctor for this Friday to get a second opinion. We want to get an unbiased opinion from someone who isn't trying to cover their own butt and will just be honest about what they think is really going on.
Well, that was my vent/update for now. Please just pray that he gets some answers on Friday and that we can move forward and hopefully get this stupid horrible disease under control.
1 comment:
i hope a 2nd opinion helps.
Post a Comment