So I went with Rubin to his doctor's appointment today and this woman seems to think that his Crohn's is back and that is what has been causing his problems since the surgery. She is having him go do a barium x-ray on Monday morning so she can see what is causing his blockages, but she doesn't think it's scar tissue. She was floored that they did surgery on him so soon without trying other treatments first. There are several medications/treatments out there that have been proven successful for a lot of people that he has never tried. She also couldn't believe that a general surgeon actually performed the surgery - she said that most surgeon's won't touch someone with Crohn's and that they don't understand it. She sends her patients downtown if they require surgery. So to sum it all up - it sounds like surgery was the wrong decision in the first place, and that it was all for nothing because it didn't solve the problem. It got rid of the inflammation in the places that already existed, but doesn't prevent it from occurring somewhere else. She wants to start him on a medication that he can self-inject every 2 weeks but it will probably be a couple of weeks before we can get that process started. Until then she is going to put him on steroids and another medication he already has (but was told by his other doctor he no longer needed to take) to try and get him feeling better. He also has to stay on liquids for a couple more days and then can progress to Bananas, Rice, Applesauce, and Toast by Sunday. The poor guy hasn't put a bite of solid food in his mouth since last Friday.
So, basically what I'm saying is that although we didn't want to hear that the Crohn's is back and that he suffered through his horrible surgery for nothing, we are glad that someone is acknowledging what is really going on and is going to actually treat it so he can start to feel better and try to get our lives back to normal.
No comments:
Post a Comment